As this post was supposed to be ready for last Friday, I have begun my search for other resources with the internet. There are four sites of interest that I would like to share with you.
To be honest, in the past I didn’t like this site too much because I had a bad experience with other users. However, I recently filled out a survey for AbilityOnline because they’re re-vamping their site. Basically AbilityOnline is a web site where kids and teens with disabilities or chronic illness can connect and talk. It was created by Dr. Arlette Lefebvre from Sick Kids Hospital in Toronto, Ontario and is worth checking out.
This is the first of two blogs on my list written by women dealing with chronic illness in the United States. Laurie Edwards has been dealing a whole host of illnesses since she was little but she is not defined by them. Her blog encourages others with chronic illnesses and illuminates different issues people with illnesses have. I’ve found that Laurie also has a great sense of humour which is very important when life seems so serious.
3. Chronic Babe
Chronic Babe is another online community, but this one is for young women with chronic illness. Sorry guys. Created and edited by Jenni Prokopy, Chronic Babe features a range of topics from careers to venting. Through her web site, Jenni sends out the important message that we are not our illnesses, instead we are babes, enitled to everything that healthy people are.
My personal favourite is Professional Patient, a blog written by Valerie Riedel. She has a great sense of humour as well, and is dedicated to discussing real life situations. Most recently she wrote a wonderful post about how to respond to the question “What do you do for a living?” when you’re on medical leave. Valerie is based out of the United States, but although she’s written some posts on medical insurance in the US, her point of view is insightful no matter what country you live in.
I encourage you to visit these and other web sites. One of the things that Dr. Arlette Lefebvre realised is that the internet is a great equalizer. No matter what your physical condition or energy level, if you can get online you can talk to practically anyone and find people who share your life experiences and can provide support. So see what’s out there. And if you find other web sites of interest, email me and let me know so I can post them.